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Only a few minutes old!
Only a few minutes old!
Charleston was born with a degenerative neuromuscular disease, Spinal Muscular Atrophy Type 1. Doctors told the family that there was no hope for him. However, there IS HOPE and we are fighting for it!!!! SMA can happen to anyone. 1 in 40 adults is a carrier of the SMA gene. Are you?
Daddy holds his little boy.
Daddy holds his little boy.
 
Little mama crying tears of joy....little did she know then what was ahead of them.
Little mama crying tears of joy....little did she know then what was ahead of them.
 
The day he was diagnosed with SMA.
The day he was diagnosed with SMA.
 
Bath time!
Bath time!
 
The day before his surgery for a feeding tube.
The day before his surgery for a feeding tube.
 
His family was so scared. But all went well.
His family was so scared. But all went well.
 
Mama and Charleston.
Mama and Charleston.
 
Beautiful mama.
Beautiful mama.
 
When I grow up, I wanna be a fireman, just like my daddy.
When I grow up, I wanna be a fireman, just like my daddy.
 
Baby boy....
Baby boy....
 
Proud mama.
Proud mama.
 
Proud daddy.
Proud daddy.
 
Daddy gettin' Cash!
Daddy gettin' Cash!
 
Sweet family at Charleston's dedication.
Sweet family at Charleston's dedication.
 
Swim therapy.
Swim therapy.
 
Talking to mama.
Talking to mama.
 
They made it to the beach! Doctors told them they never would.
They made it to the beach! Doctors told them they never would.
 
Reading a book with mama.
Reading a book with mama.
 
At Shriner's. This helps support his spine, because he can't.
At Shriner's. This helps support his spine, because he can't.
 
Sleepin' with little mama.
Sleepin' with little mama.
 
Cash and Woody!
Cash and Woody!
 
Handsome boy in his stander.
Handsome boy in his stander.
 
When his limbs are held up in slings, he has some movement. It's so exciting!
When his limbs are held up in slings, he has some movement. It's so exciting!
 
Hangin' out with dad on the couch.
Hangin' out with dad on the couch.
 
Bipap to make breathing a little easier.
Bipap to make breathing a little easier.
 
The best picture of all.
The best picture of all.
 
Napper time.
Napper time.
 
Modeling a new hat.
Modeling a new hat.
 
What a year!
What a year!
 
Cutest little toes on the planet.
Cutest little toes on the planet.
 
Little mama truly is, Wonder Woman.
Little mama truly is, Wonder Woman.
 
Set up for his walk....believe it or not, he's in there!
Set up for his walk....believe it or not, he's in there!
 
This precious boy & how he sees the world. Will you please help?
This precious boy & how he sees the world. Will you please help?
 
He's comfy!
He's comfy!
 
Big boy in his power chair! He drives it on his own, with the use of his pointer finger on his left hand. He's amazing.
Big boy in his power chair! He drives it on his own, with the use of his pointer finger on his left hand. He's amazing.
 
Mama and her precious son.
Mama and her precious son.
 
Charleston in his stander. He is upright for about an hour a day.
Charleston in his stander. He is upright for about an hour a day.
 
See how big he's getting????
See how big he's getting????
 
Spending some time outside.
Spending some time outside.
 
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 My name is Charleston, and I have SMA. Thank you for looking at my pictures.